I had an ultrasound this morning. Bleu and I had discussed earlier about his opinion that I should stop having ultrasounds and wait till the baby is born to do anything. I told him that I agree with the Dr.'s and I also agree with him, and that I would be talking to Dr. Byrne about our concerns. If the ultrasounds are strictly precautionary, then I would ask not to have any more ultrasounds till the end of the pregnancy.
Dr. Byrne has given me the go ahead to say that this is Arthrogryposis. We were hoping that it was Dystal Arthrogryposis where the hands and feet are the only ones effected, but there is a "progression" or diminished fetal movement at the hips and knees. His hands are clenched, with overlapping fingers, and his wrists have started to cock backwards.
That's not really good or bad news, it's just new news. We measured the amount of amniotic fluid, and found an excess and after checking his face for swallowing movement and belly for fullnes, we are assuming that he is not swallowing the way he should. This could mean a symptom of Arthrogryposis, or could also be a Neurological disorder that can't be diagnosed at this time.
The risks of these factors are,
If the amniotic fluid is not measured, or kept track of, it could get to an unsafe volume and cause the membranes to rupture and start a pre-term labor, also leading to a chance of severe hemmorage. I should be watching for leaking fluid, or contracting of my stomach (more than 4-5 times in an hour.) If the amount becomes too excessive, we may have to drain some of the fluid by way of amniocentisis. AGAIN.
If the baby becomes fixed in a position, Example: his knees and hips don't move, A vaginal delivery will be difficult for mom and baby, if not impossible. In a normal delivery, the baby's head is the biggest, and most difficult to deliver. But if his hips and knees don't straighten out, that will be a different story. If we don't know the status of the baby before delivery, and we try natural, he could get stuck in the birth canal, which is unsafe for both mom and baby.
Dr. Byrne and I went over mine and Bleu's concerns and she said that it is both necessary and precautionary to be having routine ultrasounds basically because there isn't really another way to check the fluid levels other than by measurements from an ultrasound. She highly suggested that I deliver at the University Hospital so that specific types of Specialists can be there if we need them to see the baby directly after the birth. If his Arthrogryposis effects his knees, I may not have to do the casting for his club feet. Alot of kids learn to walk more successfully on thier knees. So we'll see how he does before making any decisions.
All in all, I am still overwhelmingly greatful that he's still with me. There are so many things that could have gone wrong that haven't. I thank Heavenly Father for that every day. He's my little angel and I'm so blessed to have him. I think he teaches me something new every day already. Thank you so much for all of your prayers and support. I can't tell you how much it means to me.
Bleu started class this morning, so I'm excited to say that there is an end in sight. Only 15 weeks to go. It's a coin toss whether or not he'll make it home in time for the delivery. I think it all depends on the wee one, and how long he wants to stay in my belly. I was planning on flying out to see Bleu for his birthday, but I've left messages with both of my doctors asking if after all of our findings, it will be safe. I'll be at 28 weeks. In a normal pregnancy it would probably be fine. But I'm always better safe than sorry.
I love you all, and thank you so much for everything. Keep those prayers comin'!
Julia 19 Months Old
2 days ago