Monday, August 24, 2009

The Jury Has Reached a Verdict.

As you might know, I've seen a doctor about my swelling and feeling sick and so forth. I saw the kidney specialist today and we talked about what's been going on lately and he looked at the lab results that my last doctor sent to him.

.............DRUMROLL.......................

Because my protein levels are so low and comparable to a very sick person, the doctor made a suggestion that I didn't want to hear. I'll be starting dialysis at the beginning of next month and we will do lab work every month to monitor the progression. If that doesn't go well then the next step would be to start thinking about having family members tested for a tissue match in case the need for a transplant arises.

So the next step for me is to tell you that I am completely and totally kidding about all of that. Hee hee! I'm fine. The doc says it's most likely that the numbers are so low because pregnancy can do that to a woman's protein, and they've stayed that low because of the deep depression I was in and it caused my appetite to drop, which lead to the malnutrition. Just to check it out, he's doing pretty much a repeat to see how I'm progressing and says that from a kidney perspective, he doesn't see any problems. The swelling in my ankles is almost gone, which feels GREAT!

I'm also working with a Health Coach on getting back into a healthy lifestyle with eating the foods that my body needs and starting a personalized exercise program. I will actually be checked up on every few weeks to see if I'm doing what I said I would. :) I continue to loose weight for reasons unknown to me, but I'm thinking that these new lifestyle changes will help me be a healthier person.

I also have to factor in that I have been through a WHOLE LOT physically and spiritually the past few months and these have definitely taken their toll. I was beaten down in many ways and those all need to be addressed. It's a hard knock life. But that's life--it wasn't meant to be easy.

So there you have it. Just another day in Paradise.

Thursday, August 13, 2009

Update on Life in the Crazy Lane

Well Hawaii was amazing. Scuba diving was AWESOME. The beach was great. It was super nice to get away - just the two of us and enjoy eachother's company.

Because two weeks off work just wasn't enough for me, I decided to go ahead and get 1st and 2nd degree burns on the back of my legs. hmph. I didn't really decide that, but I was the one dumb enough to depend on keeping my legs underwater. Bad idea. Horrible idea.

Today, almost two weeks post-burn, I am almost able to walk normally and without grimacing. I tried to go to work Monday and was sent home by my boss. So I went to my doctor and when I showed her the burns.... ( which were now deep red in color and mostly covered in blisters) I made her gasp. Yes. LITERALLY gasp and "oh.. no...." over and over. She told me that it's basically one big open wound and to consider myself scolded. She is having me treated as a burn victim. I've been slathered with ointment, covered in gauze and wrapped with ace bandages. Plus given antibiotics and awesome pain killers. I have to change the dressings twice a day, which Sara has been wonderful enough to help me with for the first few days. Now I've mastered it on my own. It's humbling to go to a doctor and show her what I did to myself, but I'm so glad that I went in because it's helped so so much. I'm on the second bout of blisters, and my left leg's skin has turned black, but I feel so much better. The swelling in my legs is down dramatically--my right knee is almost able to straighten. But my feet are still an issue.

I had the opportunity to see a Reflexologist in Farmington that's a friend of Bleu's family. She zoned my feet and talked to me about all of the emotions that go alongside the problems I'm having with my kidneys and overall health. It was great to actually have an idea of what I can do to help fix it! there are alot of things that need addressed, and I have a lot of work to do, but now that I know, it's like a new light. I feel like there is an end in sight and it's very encouraging. I will be seeing her again soon, and I also have an appointment with a Nephrologist later in the month.

Wednesday, July 22, 2009

Doctor Says....


"I'm confused, too. You have no reason to be sick."

Whaaattt?

So the lowdown according to last month's lab results is: I have "strikingly" low protein levels in my blood comparable to a person who is in-the-hospital-sick or suffering from a chronic illness. The protein is what keeps the water in the veins. Because I have no protein, the water is escaping through the walls of the veins and pooling in my feet, which is causing the swelling. The two reasons for that to happen is kidney or liver disfunction, which my labs show neither. So I have no reason for this to be happening.

I told her that I was confused because of all of the protein that I eat, and I eat well. She's confused, too. So we took some more blood to check the protein again. If my protein level has improved at all, she is going to assume a nutritional imbalance and it should slowly get better. If there is no change, or it's the same then she will be doing phone consultations with a kidney specialist, liver specialist, and a vascular surgeon to see if I need to be refered to one of them.

In the meantime, I am eating more protein and calories, and I'm going to start wearing compression socks at night to try and control the swelling. I should get the lab results tomorrow. Hopefully all goes well and I won't be refered to a surgeon--Scary! /:

Tuesday, July 21, 2009

More Bloodwork

Well it's been one month and I'm going in for my follow up. I'm doing it all over again. Bloodwork. I really don't enjoy it.
I've been feeling a little better lately, my sick feeling is not a daily thing and the headaches are pretty rare anymore. I've been having some sharp stomach pains so we'll have to talk about that tomorrow. My appetite is a little better and I'm eating more so that's probably helping me take more calories. We shall see in a few days. Wish me luck!

Tuesday, June 30, 2009

Great News:


I'm Malnourished! Why is that news so great?? Because it's NOT Kidney Disease. When was the last time that your doctor told you that you needed to take in more Protein and Calories? Weird, but oh well. My cholesterol is normal, but my good cholesterol is way low, and my protein is way low. So I'm taking more vitamins, eating more protein and calories, and Bleu is determined to get me running in the morning. Hmmmm. I don't like that idea. But I'm happy to know that I'm Malnourished. Crazy. But hopefully all of these changes will help me feel better. Staying away from the calories is not the best way to eat healthy. That's why it's called a balanced diet. :) But I'm also happy to report that my sugar/sweets aversion stuck with me. I still can't eat very much and rarely find myself craving sweets. I still crave fruit. YESSSS!! It's so good.

Tuesday, June 23, 2009

Trust in the Lord....

...with all thine heart, and lean not unto thine own understanding. In all thy ways acknowledge Him, and He shall direct thy paths. --Proverbs 3:5-6

I've been consistently sick for about a month now. None of my symptoms made any sense and I just assumed that I was still physically and emotionally recovering from Tristan's birth and death. When Bleu (the Doctor hater ;)) suggested that I see a doctor, I realized that this has gone far enough.

After yet another sleepless night, I was laying my head on the table at work concentrating on feeling well enough to make it through a six hour day. My boss came into the room and said my name, startling me -- I was almost asleep with two very large copiers going behind me. She said "Mickaela, go home. Get some rest; we'll be fine without you."

So I filled in 1.25 hours for the day and went home and made an appointment to see a doctor. Yesterday I went in and the doctor ordered a urinalysis and blood work including a full blood count, liver function, kidney function.... the works. I got a call today and she asked to have me come back in for the very same thing on Thursday. I won't explain everything she did just to make a long and boring story short.

I have very low protein count, and she is concerned enough that she wants to do another blood and urine test for kidney disease. I looked online and finally all of my symptoms make sense.

swelling of feet
headaches
upset stomach
fatigue
dizziness
loss of memory
forgetfulness
lack of concentration

They seem pretty random until they all show up on one page as a list of symptoms. We don't know for sure, that's why we are testing further. But I would really appreciate a few extra prayers on behalf of the doctors and lab technicians so that they can see what is happening and what needs to be done.

Love you all..

Monday, June 8, 2009

Bleu's Coming Home!

------Aloha!------
And I don't mean hello.
I mean goodbye.
Cause we are leaving!
To Hawaii!
For a whole WEEK!



Bleu and I decided we need a vacation and LOTS of time together. We didn't get too much of a honeymoon when we got married besides two nights in a hotel.... and both of us were sick..... and I went to school two days later.
We talked about going to Hawaii before we got married, just after we got married, a while after we got married..... and now we've stopped talking about it. I just booked the flight and hotel. My heart was POUNDING! I've never spent that much money all at once--YIKES! But we've been saving for something like this for a long time, and BY GOLLY, WE NEED A BREAK!

Just so you all know the latest, Bleu is on the list for deployment in September. (another reason Hawaii sounds nice) It's a "most likely" situation. Bleu seems to be okay with it on the outside, and I've come to terms with the idea. Bleu and I have been apart for half of our marriage, and we will still be apart for half of our marriage when he gets home in 2010. But I've thought about it all and I would just rather get it over and done with. I thought of ways to postpone, but it's inevitable...... so why not just do it now before we have any kids and I'm working.

I have thought about some different options that I have, and I might go back to school and get my CNA. I've thought about it before and after the wonderful care that I received at the hospital, I think I would enjoy doing something like that. We are also thinking of buying a house, but might need to wait till Bleu gets a job. We aren't sure if we will be able to get one before he leaves, but we will try. He really wants to work at Airport #2 in West Jordan as a Helicopter Mechanic.

We decided that no matter what happens---whether he leaves or stays---we are going to have a great summer together and do lots of things like camping, hiking, and whatever else we come up with.....like going to Hawaii. :)

Aloha.....